When I was first diagnosed with Parkinson's Disease in the late summer of 2024, I knew that it was coming. Not only had I been experiencing symptoms for about 5 years -- lack of arm swing when walking, slowness, stumbling, lost of strength in my right arm and leg...-- but because it runs in my family: both my mother and father were diagnosed with PD in their later years, and my sister in her late 50's. I haven't tested for the marker gene, because whatever the marker is, it just represents a tendency that can be triggered or subdued by environmental and lifestyle factors. That's epigenetics, and the reason to be proactive: What I do matters.
Epigenetics is the study of how the environment and other factors can change the way that genes are expressed, beyond how the DNA is written. About 15% of Parkinson's patients have a family history of the disease, while only 5-10% are thought to have one of the genetic mutations that can predispose one to the disease (LRRK2, PARK2, PARK7, PINK1 or the SNCA gene).
The Before Times
Professionally, I work in the field of Public Health Communications (aka Behavior Change Communications or Social Marketing), and teach in the Master of Public Health program in the Larner College of Medicine at the University of Vermont. I have a doctorate in Educational Leadership and Policy Studies and a Master's degree in Media Ecology. When I trained to be a Health Coach in 2015, the background in the theories of behavior change and research-based best practices, as well as curriculum development, set me up for taking action on the epiphany I was about to have.
In 2016, I was researching a book that brought together these two interests: media and health. The focus was how the media--and advertising in particular--has created a food culture where convenience is the predominant value. In particular, I was deep into studying the tactics of Big Sugar, and how the repetition of images of kids eating sugary cereals on television has made parents and kids think that cereal is an easy and healthful breakfast -- when nothing could be farther from the truth -- when I had an epiphany in a grocery store.
I was finished with my grocery shopping and looking for a snack to eat in the car on the drive home (that's why they put the candy by the checkout!). As I was reaching for the dark chocolate peanut butter cups, I heard myself say, "You can have that, you worked out today." Now, that's something I've said to myself a hundred or a thousand times before, but since I was studying the sugar industry I was able to identify that it wasn't my rational brain talking. That's when it hit me: That's the Sugar Talking! I stood there in the middle of the market for several minutes, dumbfounded. Have I been addicted to sugar this whole time and not realized it? Are all the rationalizations and justifications for having treats consistent with other forms of addiction? How is it possible that sugar is talking to me? It was right then that I decided to change the focus of my research from advertising and policy to biology. And I was going to unravel my sugar addiction, and teach others how to do it too.
It took me two years to heal my dependency on sugar, and I created my first course Breaking Free from Sugar in 2019. To date, over 4,000 people have taken that course, with over 95% of them reporting they were successful reducing their sugar consumption and planning to continue with a sugar-minimal lifestyle. Then I wrote a book about it called The Sweet Tooth Dilemma, which became a bestseller on Amazon.
Because of that experience of healing took two years until I felt like I was on solid ground -- changing 35 years of habits, beliefs and biology doesn't happen over night -- I figure that might also be the case with PD. if I dedicate myself to learning, and experimenting with changing all the lifestyle and environmental factors within my control, that I can reverse the symptoms of Parkinsonism. And I'm giving myself two years to try (though really I won't stop trying :).
Where I am now
When I was officially diagnosed with PD in the late summer of 2024, I went through an emotionally tumultuous period, alternating self-pity and defiance. I joined the Facebook Group on Alternative Healing for Parkinson's, started following organizations and websites (see Resources tab), and generally started experimenting. I had heard that vigorous exercise was one of the only documented ways to slow the progression of the disease, so I started raising my workout game: got a Peloton bike (to use in addition to the weight training classes) and started Rock Steady, a boxing program for people with PD.
Then, in the late fall, I developed a habit of easily-triggered crying. The smallest mention or thought of having PD would send me into uncontrollable waves of tears. It felt like they were coming from my chest. Just flooded with emotions, a mix of grief, feeling sorry for myself, opportunity lost, feeling like something had been taken away from me, and even a bit of resentment -- why me, I'm so healthy?!
The months of crying came to a peak on New Year's Eve. We went out to a Talking Heads tribute band, with the youthful excitement of dancing in the New Year. Except the minute I stepped on to that dance floor, the sobbing started and barely let up for several hours. You see, I was a dancer -- not a professional dancer but a freestyle dancer, who loved to go out dancing and lose myself in the music. I used to pride myself on being able to dance to any type of music. It was a cherished form of tension release, creative expression, and often a workout too. It was the one place I could get out of my head and into my body. But on New Year's' Eve, my body was having none of it. I could barely sway to the beat let alone dance to those well-loved songs in rhythm..
I suppose that was my emotional rock-bottom, because I woke up the next morning with resolve:
- I'm not going to feel sorry for myself anymore
- I'm going to learn and do everything I can to feel the best I can
- I'm going to figure stuff out and share it with the PD community
I am sharing my journey publicly in case I actually am successful in reversing the disease there will be a record, and also to let others with PD share in my up days and down days. We need to stay resilient.
My approach is systems-based, and starts with the assumption that the rise of PD (and other neurological disorders including Alzheimer's) is not natural to ageing: it is our food, our environment, and our lifestyles are creating disease in the body. It is a functional medicine/nutrition approach that looks to address the root causes rather than merely address symptoms.
I don't have anything against addressing symptoms directly too -- I am currently taking a small dose of carbidopa/levidopa.
It is my current mission: to explore, test, and share what works.
Thanks for reading.
[PD Blog starting soon!]

It started with a single glance to a flicker in my visual field. The screen came alive. The call of dopamine.
I checked one message. A quick glance. Something pinged. A link. A thread.
Then a reel. Then a scroll. Then a scroll inside the scroll.
And when I came up for air, 42 minutes had evaporated.
Not spent. Not enjoyed. Not even regretted.
Just… gone.
This wasn’t a guilty pleasure. It wasn’t rest.
It wasn’t even procrastination.
It was stolen time.
And it wasn’t an accident.
We Think We’re Choosing. We’re Not.
The lie is this: “You’re in control. Just choose better.” (Which is a lot like the lie of “just use more willpower.”)
But most people don’t know what they’re choosing against.
They don’t realize attention is being captured, not offered.
They don’t realize time is being taken, not traded.
Because it doesn’t feel like theft.
It feels like... habits. Entertainment. Culture. Normal life.
Which is exactly the point.
Systems that want your attention don’t ask for permission.
They design for extraction.
And the more invisible it feels, the more effective it is.
This is the idea behind Marshall McLuhan’s famous observation that “the medium is the message.” That each medium or technology has embedded within it a design that shapes what it can convey, a world-view if you will. For example, television or a video clip is better for communicating about a fire than a newspaper, and a newspaper is better for communicating about economic policy. Expediency is traded for depth, and these biases are invisible.
Attention Is Not a Productivity Tool. It’s Your Life.
We often treat attention like a skill to optimize.
Focus more. Be productive. Set timers. Use hacks.
But attention isn’t a tool.
It’s your life force.
Where your attention goes, your mind goes.
Where your mind goes, your time follows.
And where your time goes, your life becomes.
That’s why this isn’t a conversation about distraction.
It’s a conversation about domination.
When a system captures your attention, it hijacks your choices.
And when it hijacks your choices, it alters your identity.
You don’t become who you want to be.
You become what you’ve been fed.
Kinda harsh.
But the reality is this: media don’t tell us what to think, they shape what we think about. And what we think about we become. At the end of the day, we are a collage of a thousand different snippets, scant few of which expand or deepen our innate sense of our spiritual nature and divinity.
The Myth of Harmless Scrolling
Let’s be honest.
We’ve all told ourselves, “I just need to decompress.”
We open the app. Scroll a little.
Get a hit of novelty.
Laugh. Cry. Gasp. Swipe.
Forget why we opened it in the first place.
20 minutes vanish. 40. Sometimes more.
The data is clear: this is by design.
Social media, entertainment platforms, and even news sites are engineered to exploit the dopamine system — the part of the brain wired to chase novelty, reward, and stimulation.
Every notification, every infinite scroll, every autoplay?
That’s not a tech feature.
That’s behavioral architecture — optimized over years to keep your attention just long enough to monetize it.
And while your attention is pulled, your perception is shaped.
What you value. What you fear. What you believe.
All subtly rewired, scroll by scroll.
Each time you watch a cute animal video, it reinforces both in the algorithm and in your brain that you like cute animal videos. Your brain automatically seeks them and the algorithm automatically feeds them to you.
“But I Like It.” Yes. That’s the Point. Just Like Donuts.
Maybe you’re thinking, But I enjoy social media. I choose it.
Let’s pause there.
Pleasure isn’t the same as freedom.
You can enjoy things that were designed to bypass your conscious will.
That’s how addiction works. That’s how slot machines work. That’s how cookies work.
That’s how attention capture works.
When you say yes to a system that was engineered to override your internal brakes, your yes isn’t fully yours.
And when that system also delivers your news, your community, your culture —
You’re not just being entertained.
You’re being shaped.
The Real Cost: Thought, Presence, and Desire
The cost of attention theft isn’t just time.
It’s thought — the ability to pause, reason, reflect.
It’s presence — with others, with yourself, with reality.
And most invisibly: it’s desire.
When your attention is constantly directed outward, desire shrinks to whatever is offered.
Your deepest longings? Replaced by what’s trending.
Your sense of time? Fragmented into dopamine loops.
Your hunger for meaning? Fed curated lives you can never replicate.
Stolen time isn’t just about distraction.
It’s about disorientation.
And disoriented people don’t rebel.
They comply.
They consume.
Is This Just About Phones?
No.
Phones are just the portal.
The real system is much bigger.
Every time you’re nudged to keep watching,
Keep scrolling,
Keep “engaging” —
You’re being kept from noticing something else:
The conversation you didn’t start.
The idea you didn’t follow through.
The project you didn’t finish.
The silence you didn’t allow.
The truth you didn’t hear.
It’s not the phone.
It’s the system that profits when you’re not fully here.
“But I Need to Be Informed.”
This is where it gets tricky.
We’re told attention is a civic duty.
That consuming content is “staying informed.”
But here’s the truth:
Most modern media doesn’t inform. It occupies.
It floods you with other people’s images, opinions, and scripts.
It replaces your inner voice with curated reactions.
And when you’re full of reaction, there’s no room for reflection.
The result?
You’re exhausted. Anxious. Angry. Scattered.
But you feel informed.
And that feeling keeps you in the loop.
It’s not a bug.
It’s the system functioning perfectly.
What Happens When You Reclaim Your Time?
Something radical.
You start hearing your own thoughts again.
You start noticing what you actually long for.
You remember what it feels like to be grounded. Present. Undistracted.
And then?
You see the theft clearly.
You realize what was taken.
And more importantly, you realize what you can take back.
Of course, the challenge here is separating ourselves from the tribe: if we are not doing what everyone else is doing, we are separate from, and therefore, from an evolutionary biology standpoint, at risk for survival. Inherent in the choice not to partake is a rejection of the cultural norm, which would make us outsiders. Different. Isolated.
The same is true for choosing not to partake in the culture that glorifies sugar or alcohol. We are seen as outsiders
Being in the world, but not part of it, becomes the existential goal if we want to maintain our sovereignty.
A Gentle Experiment: Try This
For one day:
Count how many times you reach for your phone without needing it. (Seeing the habit.)
Pause before opening any app — ask: “What am I avoiding right now?” (Understanding your nervous system.)
Before bed, write down: Where did my attention go today? (Reflecting is learning.)
Not with judgment. With curiosity.
Because noticing is the first act of liberation.
Final Thought: Your Attention Is Sacred
You don’t have to earn your freedom by being more focused.
You don’t need better hacks or habits.
What you need is truth:
Your attention is not a resource.
It is a right.
And the systems designed to take it from you
aren’t offering convenience.
They’re demanding compliance.
Reclaiming your time and attention is the basis of reclaiming and directing your life.
And no system built on stealing your attention deserves your sacred presence.
Not anymore.

© 2025 Create Change Lab, LLC and Andrea Grayson. All Rights Reserved,